Patient : I am 39 years old.I have episodes where my fingers go completely white and I'm suddenly freezing, no matter what the temperature is. My muscles tighten up and I must bundle up immediately. I feel like I'm going to die.The coldness seems to come from the back of my neck. Under the blankets and (for lack of a better description) convulsing, I pass out. I was diagnosed with lupus and RA, but the diagnosis of lupus my doctor isn't 100% sure of. I also have been retaining a lot of water. When I push on my legs they stay dented in. I'm not sure if it's related, but my urine has been smelling like ammonia on and off for about a year now. I have been having many other issues,like chest pains, but not as serious as the "cold spells". As far as family history goes, my paternal grandfather died of leukemia, 2 sisters died of heart problems as babies, one sister died of a massive stroke, my paternal grandmother died from heart failure and my dad has an internal pacemaker. Please don't just refer me to see my doctor. The last time I saw him, he didn't believe me when I told him the truth. Plus, he never gives me time to explain to him what is going on. He is too stuck on his basic questions and ideas that don't pertain to me. One example is morning stiffness. I don't have that. I stiffen up at the end of the day when I stop moving. If I go for a half hour walk and sit for 5 minutes I will stiffen up. I feel like a statue trying to move through barriers.
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