Ehlers Danlos syndrome EDS

Patient : My girlfriend was diagnosed with Ehlers Danlos syndrome EDS last year. The past month she seems to be getting worse. She is constantly feeling nauseous and is very weak. Her legs are weak and have a tingling sensation. Her hairs appears to be falling out and the hair on her legs stopped growing. She will be 41yo this month. I have taken her to the er many times, but can't seem to get any answers. I told her I would help with finding some kind or answer Thanks
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