Medical Mystery...has stumped many Doctors

Patient

Q: 15 months ago I Started getting constipation and stomach pain on left side and over pelvis. This gradually increased and I started losing weight without trying. Also developed irregular periods and intense pain that sometimes went through back and down legs, which was solved some what by using the pill. I had blood tests which despite slight abnormalities were normally pretty good and urine tests usually confirmed either an infection or something in it that could indicate was going to be infection. Also developed tonsillitis with a rash that covered my whole body and the Doctor suspected that was possible HSP, but was not confirmed. I had smear tests which came back as clear as well as several STD tests all clear. XRAYS showed constipation. Transit time study was normal. Ultra sounds showed something like a cyst or hole in the liver and something like a vericous vein on the left side of stomach. CT scan came back as normal. Tests for Diabetes came back negative. Endoscopy came back with ulcer in stomach as well as abnormalities on the wall and inflammation. The colonoscopy came back as normal. I am on treatment for the ulcer. During this time I have also got joint pain in hips and wrists and the stomach pain has meant that I had to give up my job that I love as a teacher. They queried celiacs and crohns which were both negative. Just yesterday was back in hospital again with pain in the upper stomach and mid back which I thought may be related to the ulcer despite never having the pain for the ulcer before except in mid back. They queried maybe gall stones or infection of gall bladder and tested liver and pancreas to make sure was functioning normally. Morphine settled pain and lowered my heart rate which was 130 when they took me in and lowered blood pressure back to near normal. They also gave me the 'pink lady' which is a mix of mylanta and something else? Anyway the blood tests came back fine, the urine sample again showed up something that was not quite an infection and they have scheduled another ultrasound to see the gall bladder but haven't had it yet. Anyway, it has been 15months now and I am still losing weight, sometimes at a rate of a kilo a week and I am living off daily doses of tramadol. I am also always very tired, sometimes when my daughter is away at her dads I can sleep all night and all day to about 4pm and still feel tired. I want answers so I can start work again or look for work if I have to live with the pain. I was wondering if anyone had any ideas? I am still waiting for more tests but these take months or a year or so before I can have them...

Doctor

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