Questioning a diagnosis of PSC

Patient : I hope this isn't too much of a specialized question... My wife (26) was recently diagnosed with PSC (she got the diagnosis from the Mayo Clinic in AZ). Since this is such a serious diagnosis, we want to make sure that it is true. There is one thing that we feel may have been left out (though we aren't positive) when they made the diagnosis... When my wife originally went to the hospital because she started getting pain and was pretty jaundice, the GI doctor ended up putting a tube through her side and into her bile duct (forgot what this is called) after a failed attempt at doing an ERCP. Originally, he said there was a mass that was blocking his way (took measurements and everything), and was in turn blocking her bile ducts. They also said that the tube may very well flush the mass out. With that information, they sent us to the Mayo clinic for more specialized treatment. At our first visit to the Mayo clinic, they removed the tube and stated that had found no mass, and put stints in her bile duct. There was another ERCP done later on, which is when they diagnosed her with PSC. The thing that is bothering us, is that they said there was no mass there and that PSC was the reason her bile ducts were closing. It seems like they just threw out what our other doctor had found to begin with, which we thought could possibly be an alternate explanation for what was going on. Are we kidding ourselves or should we pursue this as an option as well? Although there's no real treatment for PSC, we want to be able to proceed the best way we can as early as we can, so the last thing we want is to waste time with chasing an idea that isn't really viable...
Doctor :   This question is currently in queue and will be answered shortly by one of our doctors. In the meantime you may browse our library of answered questions by clicking here.

Related Q&A

Q: Hi :) i scrapped my skin under my nose last week and i now have a wound that takes a long time to heal the outside of...

Q: I got a question to ask; I have been on magnesium citrate for a while now and when I do take them, they deplete immed...

Q: Hi, I had a small cut on my fingernail and a few weeks ago after a bowel movement some fecal matter got through the...

Q: Hi. I took photos of my chest x-ray. Please tell me that there x ray are normal or not. Tell me is there any chance o...

Q: Hi, I am a 35 year old male, not overweight (actually quite thin) and no other major health issues. For the last y...

 
DOCTOR ADVISORY BOARD
218

Dr. James Obaji M.D.

  • 247 Reviews
  • Family Physician
173

Dr. Suneel Sharman M.D.

  • 190 Reviews
  • Family Physician
138

Dr. Pat Golden M.D.

  • 169 Reviews
  • Cardiologist
98

Dr. Kunaal Jindal M.D.

  • 112 Reviews
  • Plastic Surgeon
CNN
BBC
MSNBC
CBS
abcNews
FoxNews