Patient : I am trying to be as specific as possible here. I am a 28 year old female. I have had a pacemaker since I was 21, after 5 ablations, due to massive cell overgrowth in my sinus node and Wolf Parkinsons White. RSD in my right foot and ankle. I also have I have been sick for almost 3 years now. I have had my pacemaker checked recently and I have had a stress test. It seems the problems are not coming from my heart. It started with severe dizziness, fatigue and soreness. Things have gotten progressively worse and I am starting to fear for my life. I do have doctors appt soon and I have seen many doctors and had many tests since this has started. Now, I can't sit up for any length of time without getting dizzy. Sometimes just reading or watching TV can make me nauseous. I am losing control of my muscles, I have trouble using my hands, I am losing feeling in various parts of the right side of my body, my eyes are swollen and blood is leaking into my eyeball, I have a constant pain in my head on the right side, it's almost like a line that goes from the front to the back of my head, I am having great difficulty speaking, my words are slurred and jumbled and I have trouble getting the words out that I want to say, all of my senses are very sensitive, I am having trouble spelling and seeing, I have consistent diarrhea and vomiting (have had endoscopy and colonoscopy)I have had a fever for at least 6 months it started at between 99.5 to 100.5, now it is hovering around 101, I feel like I am being electrocuted in my face, I have severe pain in my entire back but it's worse in my lower back and neck, I feel like my body is dying. I am not looking for a diagnosis but I really want to know what could be causing all of this, what are the options? I have had a lot of bloodwork and this is what I know; I am slightly anemic, my red blood cells are very large, I have a build up of protein and acid, and my vitamin d is high. I have turned to the internet because I know this is serious and even with the bizarre blood tests and fever (tangible proof), the doctors will not take me seriously because "I am too young to be so sick". I am seeing a new neurologist soon but I would like to know what this could be in case I am not taken seriously again. My mother has even told the docs she's afraid I will die in my sleep and they blow her off. I am not exaggerating about that unfortunately. One doc even told me flat out that she didn't believe me and refused to do anything for me.I am afraid the RSD is in my brain. I just don't know what to do.
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