Toddler with hypoglycemia symptoms or possible other condition


Q: My daughter has been having problems for a year now. Her symptoms started as fits, lack of emotion, almost seizure like, sweating, whimpering, shaking, screaming, kicking, spots in her eyes, slurred speech, loss of memory.

After a long time of visits with her ped she recommended an eeg. We went to the hospital and had this done along with an MRI. It all came back normal. Actually they told us she needed mental help and to go home and figure that out. They didn't do a panel on her or check her with a meter to see if at any time her glucose could be related. At the time they also had her on clonazepam thinking she was having seizures then requested that I wean her off them. I did that.

Her symptoms remained the same but she added headaches and vomiting and anxiety to this. So she was put on Amitriptilin 5mg. After a while her stomach pain and headaches eased to few times a week instead of every day. She still has the whimpering, with nightmares, shaking, sweating, pasty face. She is hungry all the time. She eats but its not a lot and multiple times a day. Plus mild weight loss now. One of those headaches was bad enough because she was not urinating that I took her to the ER they did a glucose and it was 62. I just had a blood draw done on her but the nurse didn't give me any numbers. She said it was all ok. So I have a meter and I've been keeping an eye on her glucose. It's the only thing that I have to go on. She gets close to lows and close to highs but they said she is still not out of range. She also has highs before she eats like 113 and then 88 two hours after she eats. Or she had one that was 122 before she ate and 78 after she ate. The doctor told me not to focus on her numbers but when she has weird symptoms of hypoglycemia with these episodes I am completely thrown off. Plus it is driving me crazy she has been poked and pushed and moved and its taking a toll on all of us. I know her list of numbers is not way out of the ordinary but I am wondering what I should be looking at here? I know I am not crazy and my gut tells me that her glucose is the key but just how I am not sure.
I should also mention during these episodes she is tight her muscles are contracted and she is strong, really strong. She curls her hands and arms up and it's hard to get any juice or candy in her mouth. Her jaw is tight and she is not willing to let me in. When I do get the juice into her mouth it takes a couple minutes but then she slowly starts to come out of it. The whole time I was giving her clonazepam I was giving her juice so I never associated the juice possibly bringing her out of whatever she is doing. These episodes are not occurring out of range, like one at 78, one at 112, one at 124. Its not bad numbers at all. She shouldn't be having episodes because her numbers do not meet the minimum or max. So I am confused, what am I missing here?


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